This is the story of Hollywood photographer, Robert Zuckerman, whose “life through a lens” gets turned upside down after he is diagnosed with a rare, debilitating genetic disease, generally referred to by its initials, APBD. The challenges Robert has faced – continues to face each day – would have been insurmountable for most. But not Robert.
APBD - Adult Polyglucosan Body Disease - is one of 7,000 orphan diseases – defined as diseases which affect under 200,000 individuals. There are 350 million people worldwide that have an orphan disease. APBD sufferers have a missing enzyme which causes toxic substances to build up in the body. Because of the similarity of symptoms, APBD is often misdiagnosed as Multiple Sclerosis and ALS.
Please direct inquiries to: Jeff and Ronete Levenson, (917) 494-2251 firstname.lastname@example.org